Ontology Working Group
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Comment: Mary Helen updates, Synthea

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American National Standards Institute (ansi.org)

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bioportal
bioportal

BioPortal

comprehensive repository of biomedical ontologies (bioportal.bioontology.org); managed by NCBO

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category
category

category

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Logical Observation Identifiers Names and Codes (say "loink"); coding standard for healthcare measurements, such as laboratory test values and vital signs; authored by the Regenstrief Institute

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MITRE

The MITRE Corporation (mitre.org), author of Synthea{{^TM^}}

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ncats
ncats

NCATS

US National Center for Advancing Translational Sciences , part of the NIH (ncats.nih.gov) (say "en-cats"); part of the NIH

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ncbc
ncbc

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NCBCs

US National Centers for Biomedical Computing (wikipedia) are an initiative of the National Institutes of Health (NIH); there are several centers, including the National Center for Biomedical Ontology (NCBO) and the National Center for Integrative Biomedical Informatics (NCIBI)

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ncbo
ncbo

NCBO

US National Center for Biomedical Ontology (bioontology.org); hosts the BioPortal

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ncibi
ncibi

NCIBI

US National Center for Biomedical ComputingIntegrative Biomedical Informatics (ncibi.org)

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nchs
nchs

NCHS

US National Center for Health Statistics (cdc.gov/nchs); author of ICD coding standards

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ndc
ndc

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US National Drug Code; coding standard for medications; authored by FDA

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nih
nih

NIH

US National Institutes of Health (nih.gov), under DHHS

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nlm
nlm

NLM

US National Library of Medicine (nlm.nih.gov); author of RxNorm and UMLS coding standards

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npo
npo

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HHS Office for Civil Rights (hhs.gov/ocr), investigates HIPAA violations

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ohdsi
ohdsi

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Observational Health Data Science and Informatics (ohdsi.org) (say “odyssey”), successor to OMOP (est. 2014)

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omop
omop

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Observational Medical Outcomes Partnership (2009–2014) (omop.org) , succeeded by OHDSI (say “oh-mop”), succeeded by OHDSI

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omopcdm
omopcdm

OMOP CDM

The OMOP common data model is used by many institutions for research. It can be used in the i2b2 CRC database for recording patient data. Many institutions prefer this format over the i2b2 CDM because it more readily supports research outside of i2b2. This CDM can also be joined with the i2b2 CDM to allow the patient data to remain in the OMOP CDM tables, while the i2b2 software accesses the patient data through database views .that mimic the i2b2 CDM

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oracle
oracle

Oracle

relational database management system supported by i2b2

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an i2b2 project is a specific pairing of a patient database (CRC) with a metadata database (ONT); each i2b2 instance can support multiple projects; a patient database may be paired with multiple metadata databases, but each metadata database may be paired with only one patient database

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redcap
redcap

REDCap

Research Electronic Data Capture (projectredcap.org), provided by Vanderbilt University free to NPO’s for conducting research (say "red-cap")

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Regenstrief Institute

author of LOINC coding standard

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rxnorm
rxnorm

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coding standard for medications, part of the UMLS; authored by NLM (say "r-x-norm")

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shrine
shrine

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Shared Health Research Information NEtwork. (catalyst.harvard.edu/services/shrine/).  Application/webapp for querying patient data, a client of i2b2; returns results from multiple institutions (e.g., the ENACT Network).   Consists of 3 web apps:  Data Steward, Webclient, and Dashboard.

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snomed
snomed

SNOMED

Systematized Nomenclature of Medicine; SNOMED Clinical Terms (SNOMED CT) is a coding standard for all categories of clinical research informatics (say "snow-med"); authored by IHTSDO (SNOMED International)

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snomedinternational
snomedinternational

SNOMED International

same as IHTSDO; author of SNOMED coding standards

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sql
sql

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Synthetic Public Use Files; a demonstration/development/test patient database consisting of Medicare claim information; not for research use (say "sin-puff")

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synthea
synthea

Synthea{{^TM^}}

a synthetic-patient-population generator; creates realistic (but not real) patient data and associated health records in a variety of formats; may be used for setting up a demo database for i2b2 (say "cynthia"); authored by The MITRE Corporation

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taxonomy
taxonomy

taxonomy

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Ontology Working Group OWL