A

ACT

Accrual [of Patients] to Clinical Trials; NCATS-funded consortium of CTSA hubs that incorporates SHRINE instances across the USA; superseded by ENACT

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web server software for hosting the i2b2 webclient (user interface) on Linux; may be deployed on the same host as the Wildfly server

C

category

also called "domain"; a kind of data in clinical research informatics; diagnoses, procedures, medications, lab tests, and demographics are examples of categories in the i2b2 ontology

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Clinical and Translational Science Award from the NIH

D

de-identified data

over 18 different types of personal data must be removed from patient records to qualify as “de-identified” data; not generally useful for research; NOT the same as "limited-data-set data"

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a software program that emulates a virtual machine; a Docker "image" of the i2b2 core server is available for testing and/or exploring i2b2; Docker allows i2b2 to be run in a sheltered environment on a non-production host; it is not recommended for production use

E

EHR

Electronic Health Records (also EMR)

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extract, transform, load (database conversion); the primary ETL for i2b2 is in the conversion of EHR/EMR to the CRC database (CDM)

F

FHIR

Fast Healthcare Interoperability Resources, interoperability standard from HL7 (say “fire”)

G

GIS

Geographic Information Services

H

HIPAA

Health Insurance Portability and Accountability Act, 1996, allows people to transfer their health insurance from one employer to another; includes privacy and security standards (say "hipp-uh")

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Health Level Seven International, an ANSI-accredited standards-developing non-profit organization, since 1987 (www.hl7.org); author of FHIR

I

i2b2

Informatics for Integrating Biology and the Bedside (i2b2.org)

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Institutional Review Board (required anytime human subjects are part of the research)

J

JBoss

former name of the Wildfly server software

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Java Runtime Environment; a version of Java that does not include the Java compiler nor related support libraries; not used in i2b2

L

LDS

see limited data set

limited data set

PHI which excludes direct identifiers of the patient, their family, employer, etc.  May include city, state, ZIP code, general geographic info, DOB, DOD, age in years, months, days, or hours.  Still protected under HIPAA.  This is NOT the same as de-identified data; some could say it is only "partially" de-identified.  It may NOT include name, address, phone, email, SSN, MRN, insurance ID, account #’s, license #’s, vehicle IDs, device IDs, URLs, IP addresses, biometric IDs, photos, etc.

N

NCATS

National Center for Advancing Translational Sciences, part of the NIH

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NPO

non-profit organization

O

OCR

HHS Office for Civil Rights, investigates HIPAA violations

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relational database management system supported by i2b2

P

PHI

protected health information

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relational database management system supported by i2b2

R

REDCap

Research Electronic Data Capture (projectredcap.org), provided by Vanderbilt University free to NPO’s for conducting research

S

SHRINE

Shared Health Research Information NEtwork. (catalyst.harvard.edu/services/shrine/).  Application/webapp for querying patient data, a client of i2b2; returns results from multiple institutions (e.g., the EnACT Network).   Consists of 3 web apps:  Data Steward, Webclient, and Dashboard.

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Synthetic Public Use Files; a demonstration/development/test patient database consisting of Medicare claim information; not for research use

T

taxonomy

hierarchical arrangement of concepts such that each concept is a "child" of a more inclusive "parent" concept

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multi-institution research network, similar to i2b2+SHRINE

V

vocabulary

similar to terminology; each coding standard periodically publishes a revision of its vocabulary, which defines all the terms which should be in current use in the i2b2 ontology

W

Wildfly

web server software for hosting Java-based applications; in the world of i2b2, Wildfly is used to host the i2b2 core software