...

Informatics for Integrating Biology and the Bedside (i2b2.org)

i2b2/tranSMART CDM

The i2b2/tranSMART common data model is the primary patient data model used in i2b2 and tranSMART. It consists of a "star schema": one table for the multitude of patient-related observations, supported by "dimension" tables for patient demographics, encounter data, provider data, etc.

IRB

Institutional Review Board (required anytime human subjects are part of the research)

...

PHI which excludes direct identifiers of the patient, their family, employer, etc.  May include city, state, ZIP code, general geographic info, DOB, DOD, age in years, months, days, or hours.  Still protected under HIPAA.  This is NOT the same as de-identified data; some could say it is only "partially" de-identified.  It may NOT include name, address, phone, email, SSN, MRN, insurance ID, account #’s, license #’s, vehicle IDs, device IDs, URLs, IP addresses, biometric IDs, photos, etc.

...

Observational Medical Outcomes Partnership (2009–2014) (omop.org), succeeded by OHDSI (say “oh-mop”)

OMOP CDM

The OMOP common data model is used by many institutions for research. It can be used in the i2b2 CRC database for recording patient data. Many institutions prefer this format over the i2b2 CDM because it more readily supports research outside of i2b2.

PHI

protected health information

...

Shared Health Research Information NEtwork. (catalyst.harvard.edu/services/shrine/).  Application/webapp for querying patient data, a client of i2b2; returns results from multiple institutions (e.g., the EnACT Network).   Consists of 3 web apps:  Data Steward, Webclient, and Dashboard.

tranSMART

software related to i2b2, used for translational studies; incorporates i2b2 CDM, but includes additional databases for genomics, etc. (i2b2.org)

TriNetX

Multimulti-institution research network, similar to i2b2+SHRINE